Why we run: Baby Edyn's story - KSLA News 12 Shreveport, Louisiana News Weather & Sports

Why we run: Baby Edyn's story

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Baby Edyn Baby Edyn
Baby Edyn Baby Edyn

A note from Domonique Benn:

On the last day of our run 3 mile run for March of Dimes Babies, I got a call from Baby Edyn's mother who told me she passed yesterday. I did a story on 8-month-old Edyn during this 8 week running journey to raise awareness for the March of Dimes and the research they do. Edyn's family is holding up and says they want me to continue to tell her story because there are other babies fighting right now. Lord I ask you to bless Edyn's family!!!! This is why we need you to give to March of Dimes research for premature babies.

SHREVEPORT, LA (KSLA) –The problem of premature births has been on the rise in the United States. Since 1981, premature births have increased by 30 percent. Every year, more than half a million babies are born prematurely in the United States. March of Dimes research is working to reduce that number and the organization is committed to finding the cause of birth defects.

Every premature baby has a story, with many of them being heart wrenching. Baby Edyn is one of those babies: She's had more surgeries than most adults have ever had.

Deidra and Eric Robertson are the parents of baby Edyn who was born 12 weeks early. She's been in the Willis-Knighton Neonatal Intensive Care Unit since for eight months now and the family still has no idea when they will be able to bring her home. 

According to Edyn's mother, all baby Edyn has ever known is pain which is visible on her little face. Her mother says her baby cries, but you just can't hear her because of the breathing tube.

Many parents go through the traumatizing experience of seeing their little loved ones suffer, leaving them heartbroken and distressed.

"This is something you will never know unless you go through it," says Deidra, Edyn's mother.

"She's having a rough week, still something is going on with her intestines; she is still having a lot of blood."

Baby Edyn has been through three surgeries already in which she lost 70% of on her small intestines. Out of 120 centimeters, she is now left with about 23 centimeters only.

Edyn weighs only 6 pounds 11 ounces and nurses say that at eight months, she should be weighing around 16 pounds, which means she is not eating enough.

Getting her to eat on her own and gain weight is a challenge, but that's not the only problem this baby is trying to overcome.

"She has a brovicacin in the middle of her chest, that's basically to get her IV meds in so they would not have to keep sticking her and she had to receive blood last week which is why she has this on her arm," adds Edyn's mother.

The experience of having a premature baby has introduced the family to the March of Dimes.

March of Dimes is an organization working to reduce the risk of birth defects by making research possible in the fight against premature babies.

Deidra, Edyn's mother is very happy about all the work and effort that March of Dimes does.

"Off course I appreciate any organization that does anything to help with babies. I appreciate it a lot more than I would 5 years ago before I wasn't aware."

The Robertsons have been at the hospital every day for the past eight months and they say they will continue until they can bring their baby girl home.

"She will have to have a feeding tube in her stomach which is something she will have to come home with."

Deidra has joined a support group at the hospital with other mothers. They share stories and give each other strength as they look forward to one day taking their babies home.

The March of Dimes is an organization working to reduce the risk of birth defects and premature babies. Make your donation today!  The March of Dimes uses .77 of every dollar raised to support research and programs that help moms have full-term pregnancies and babies begin healthy lives.  Learn more here about where your money goes. 

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